SDR - Selective Dorsal Rhizotomy is.a.lofe changing surgery for children and adults. It's showing great results for children with cerebral palsy as this surgery will permanently remove the spasticity from their legs. It is making wonders with children who is Diplegic CP and GMFCS level with in the range of 1-3.
Monday 20 November 2017
Sunday 4 June 2017
Pranav Walking(holding the bars) After Botox
Pranav was admitted to the day ward for surgery. He was really brave during this process. He allowed to give anesthesia through his hands(although its painful).
After Botox, Pranav's spasticity is reduced a bit. Due to weight constraint, he has got a limited dose of botox. It took a week to see the change in his spasticity.
Although there is no significant change in the spasticity, Pranav showed the siginificant change in his walking pattern. He is able to walk holding the bars without our support. He did not want us to hold!!! He wanted to walk by himself. But still, we safeguard around him as he needs balance and strength to the left arm. His scissoring pattern is reduced a lot while holding the bars. It's a great change!!
I have uploaded the video here. After seeing him walking, I feel he is really determined to walk independently.
After Botox, Pranav's spasticity is reduced a bit. Due to weight constraint, he has got a limited dose of botox. It took a week to see the change in his spasticity.
Although there is no significant change in the spasticity, Pranav showed the siginificant change in his walking pattern. He is able to walk holding the bars without our support. He did not want us to hold!!! He wanted to walk by himself. But still, we safeguard around him as he needs balance and strength to the left arm. His scissoring pattern is reduced a lot while holding the bars. It's a great change!!
I have uploaded the video here. After seeing him walking, I feel he is really determined to walk independently.
Tuesday 9 May 2017
The Journey Of 5 Years
The biggest step in our lives all through the 5 years, he started his schooling. He is doing great at school. He has been a real superhero in his class keeping the cheerful smile always. The good thing is he is enjoying with his peers at school.He gets socialised very well.He always comes up with a can-do attitude and a powerful smile. Being his mother sometimes I get deprived about his condition. His determination and his words give me strength. His smile gives us lots of energy. I pray the god that he continues his schooling like any other child to have the experience of learning.
Wednesday 1 February 2017
MOTHER IN ME
Pre-Mature birth, low birth weight, hypoglycemia, gestational diabetes, a woman who has experienced all these with her newborn baby and also has seen her mother's sudden demise on the same day. With God's grace and with her husband support she is going still strong. Life changes her from sensitive girl to a powerful mother with a sensible heart.
Cerebral Palsy is a condition which immobilizes a child physically. Sometimes it could affect a child mental ability too. A child with cerebral palsy needs utmost care and treatment. The battle of motherhood taught me, unconditional love and selfless love. It is hard to accept that life changes completely. But with growing time and needs, I get used to looking after my son who has cerebral palsy.
The primary initiative in writing this post is to accept the unexpected changes in our lives and how to be positive. My son was diagnosed with cerebral palsy when he was 12 months old. I could not accept that it had happened to my son. The feeling was heart stabbing. Moreover, I was in trauma with my mother's loss. There were many sleepless nights in this journey. It took for me, two years to understand what is cerebral palsy. I have come to a phase of life, preparing for the worst is the best. I imagine myself how I react if I was disabled. One of the lessons I have learnt is the value of happiness. Mother's happiness gives immense strength to her children. I try to be happy most of the times. I want to be his inspiration and want to give him the best brought up in facing challenges. So far, I am glad to see my son happily smiling. He is such a joy to care and to teach. Moving forward with his positives, makes life very much elegant.
It was so hard to take time for myself. I was very much isolated. But during this period I have learned a lot. Although it was hard to step out of the home the world was so transparent to me. Transparency of the world is ignorance, sympathetic and underestimation. 'Mother In Me' has taught me not to care about negative emotions. Sometimes I become blind and deaf to the negative emotions around me. After all, I have just seen 6 Years of motherhood, yet a lot to face. However, in this journey, I met people with a pure heart and true love too. The strength and love I get from them are immense. Mother in me changed the perception, how I look at the world.
So far my journey has lot many hardships, sacrifices, ignorance, but lessons learnt are plenty. I wouldn't be honest if I say there are no regrets. Regrets are like I should have found the delay in milestones at the earliest, so I could have started the treatment sooner. I should have done my driving test before even having a kid as I know now how important is to be independent with frequent hospital appointments.
Like I said the lessons learnt are plenty. Now I am in a position to share my views or my experiences with someone who looks after the cerebral palsy child. I enjoy every skill I teach my child. I'm so proud of every milestone he achieved. The awareness about cerebral palsy is very little in all the aspects. I feel privileged to work on cerebral palsy awareness through my son facebook page. I am glad that my son shows my Mother In Me, through my actions.
Cerebral Palsy is a condition which immobilizes a child physically. Sometimes it could affect a child mental ability too. A child with cerebral palsy needs utmost care and treatment. The battle of motherhood taught me, unconditional love and selfless love. It is hard to accept that life changes completely. But with growing time and needs, I get used to looking after my son who has cerebral palsy.
The primary initiative in writing this post is to accept the unexpected changes in our lives and how to be positive. My son was diagnosed with cerebral palsy when he was 12 months old. I could not accept that it had happened to my son. The feeling was heart stabbing. Moreover, I was in trauma with my mother's loss. There were many sleepless nights in this journey. It took for me, two years to understand what is cerebral palsy. I have come to a phase of life, preparing for the worst is the best. I imagine myself how I react if I was disabled. One of the lessons I have learnt is the value of happiness. Mother's happiness gives immense strength to her children. I try to be happy most of the times. I want to be his inspiration and want to give him the best brought up in facing challenges. So far, I am glad to see my son happily smiling. He is such a joy to care and to teach. Moving forward with his positives, makes life very much elegant.
It was so hard to take time for myself. I was very much isolated. But during this period I have learned a lot. Although it was hard to step out of the home the world was so transparent to me. Transparency of the world is ignorance, sympathetic and underestimation. 'Mother In Me' has taught me not to care about negative emotions. Sometimes I become blind and deaf to the negative emotions around me. After all, I have just seen 6 Years of motherhood, yet a lot to face. However, in this journey, I met people with a pure heart and true love too. The strength and love I get from them are immense. Mother in me changed the perception, how I look at the world.
So far my journey has lot many hardships, sacrifices, ignorance, but lessons learnt are plenty. I wouldn't be honest if I say there are no regrets. Regrets are like I should have found the delay in milestones at the earliest, so I could have started the treatment sooner. I should have done my driving test before even having a kid as I know now how important is to be independent with frequent hospital appointments.
Like I said the lessons learnt are plenty. Now I am in a position to share my views or my experiences with someone who looks after the cerebral palsy child. I enjoy every skill I teach my child. I'm so proud of every milestone he achieved. The awareness about cerebral palsy is very little in all the aspects. I feel privileged to work on cerebral palsy awareness through my son facebook page. I am glad that my son shows my Mother In Me, through my actions.
Monday 16 January 2017
THE BATTLE OF MOTHERHOOD
This is my first post on this blog. This blog is so special for me, as it has all my emotions that have been structured in the form of posts. I love writing. I feel writing is one of those skills which is emerged from the most extreme emotions that happened in our lives. Here I write about my son who has cerebral palsy. This blog has mixed emotions, lots of hard work, lots of positive attitudes, gaining strength from weak points. And surely this blog isn't for gaining sympathy. My only motive for creating this blog is to stand up as an inspiration for few members at least so that my experience would be helpful for few mothers.
My journey as a mother has turned my life upside down. Not just as a mother, but as a daughter too. On the day my son was born my home filled with relatives and well-wishers not to share our joy but to condolence our mother's sudden demise which was really unexpected and unacceptable for all of our family members.
Subscribe to:
Posts (Atom)