Why is it important to go for highly expensive surgery for Pranav?
At the moment, Pranav can walk using the walker(PACER) for only short distances. It gives him the gait training but as he grows his muscles getting stiff and painful. It would be hard for him to continue the physical therapy what we doing currently. As he grows it will be more painful.
If he discontinued the physical therapy there are greater chances for him to get his hips dislocated which leads to further surgeries to correct it. Through SDR, we can avoid many more orthopedic related surgeries for him. We have seen the stories of CP adults who couldn’t have SDR but had to go for 10-12 orthopedic surgeries in their life. It was really painful for us to see their stories and couldn't imagine Pranav with pain in his whole life. As we have the possibility and we are fortunate enough to find the DR who is performing this surgery form past 25 years. All their stories inspired us to step ahead.
What are the chances of walking?
Pranav is a 6-year-old boy, but he has seen lot many challenges and at the same time many achievements in his journey.
He came from crawling to weight bearing and walking using a supportive walker(with highly safeguarding measures)
From supportive walker to very less supportive walker(Kaye Walker) ( which doesn't require to tie him he can manage his own weight and can balance himself).
He can write few sentences using his own hands(Which is really hard, but he practiced a lot to come to this stage).
These are all the things he achieved only with physiotherapy. But post surgery will give him the opportunity to get the better outcome from the intense physiotherapy.
At the moment, we can show what he achieved and we are eagerly waiting for the post-surgery predictions post surgery from the DR.TS Park’s team.
But one thing for sure, it is a matter of years of hard work for parents and especially for Pranav. This surgery is not a miracle to give him the chance of walking immediately. We have realistic expectations from the outcome of this surgery.
How can we justify your support is relevant for this cause?
Pranav is a very bright and determined boy. There is a lot of imbalance between his physical capabilities and intellectual skills. You are not only supporting the parents but also preserving the Pranav's future and his Perseverance.
Why do we need to choose US, DR TS Park?
Pranav’s form of CP is quad CP which means all his four limbs got affected. Dr TS Park has performed many SDR surgeries for children with quad CP. We chose him as he is experienced with complicated cases (quad CP). Moreover, we have seen many stories in FB public group called Selective Dorsal Rhizotomy - St. Louis Children's Hospital (with quad CP) stories gave us the boost and confidence that Pranav can avoid many challenges in his life, opting for this surgery.
How much it costs for the intensive physiotherapy?
Pediatric physiotherapy for SDR is not available in reachable locations. It costs per session 80£. Intensive physio will be more than 2 hours for 2-3 weeks. Moreover, we book local accommodations. As we have contacted many parents the funds we raise is enough for intensive physio and surgery cost.
How did we learn about the surgery and funding?
We contacted many parents who have gone through this journey and met their children post-surgery who were diagnosed same as Pranav. Initially, we decided to step ahead without funding but every parent advised us it's impossible to opt for this surgery without funding as it is expensive journey but worth for the child’s future. Moreover, post surgery we should have few years of intensive physiotherapy.
This journey is expensive moreover, in many stories, mostly mums/dads leave their careers to give their full-time care for their children which puts them behind their financial abilities. As a mum, I took a permanent break from my career, as we have no option left.
We are new to this journey, but we are taking guidelines from the stories of other parents. We are glad to share our experience with SDR and CP to others. It would be great if at least one child with CP gets benefited from our story. This is not just about raising funds, but creating awareness too.
At the moment, Pranav can walk using the walker(PACER) for only short distances. It gives him the gait training but as he grows his muscles getting stiff and painful. It would be hard for him to continue the physical therapy what we doing currently. As he grows it will be more painful.
If he discontinued the physical therapy there are greater chances for him to get his hips dislocated which leads to further surgeries to correct it. Through SDR, we can avoid many more orthopedic related surgeries for him. We have seen the stories of CP adults who couldn’t have SDR but had to go for 10-12 orthopedic surgeries in their life. It was really painful for us to see their stories and couldn't imagine Pranav with pain in his whole life. As we have the possibility and we are fortunate enough to find the DR who is performing this surgery form past 25 years. All their stories inspired us to step ahead.
What are the chances of walking?
Pranav is a 6-year-old boy, but he has seen lot many challenges and at the same time many achievements in his journey.
He came from crawling to weight bearing and walking using a supportive walker(with highly safeguarding measures)
From supportive walker to very less supportive walker(Kaye Walker) ( which doesn't require to tie him he can manage his own weight and can balance himself).
He can write few sentences using his own hands(Which is really hard, but he practiced a lot to come to this stage).
These are all the things he achieved only with physiotherapy. But post surgery will give him the opportunity to get the better outcome from the intense physiotherapy.
At the moment, we can show what he achieved and we are eagerly waiting for the post-surgery predictions post surgery from the DR.TS Park’s team.
But one thing for sure, it is a matter of years of hard work for parents and especially for Pranav. This surgery is not a miracle to give him the chance of walking immediately. We have realistic expectations from the outcome of this surgery.
How can we justify your support is relevant for this cause?
Pranav is a very bright and determined boy. There is a lot of imbalance between his physical capabilities and intellectual skills. You are not only supporting the parents but also preserving the Pranav's future and his Perseverance.
Why do we need to choose US, DR TS Park?
Pranav’s form of CP is quad CP which means all his four limbs got affected. Dr TS Park has performed many SDR surgeries for children with quad CP. We chose him as he is experienced with complicated cases (quad CP). Moreover, we have seen many stories in FB public group called Selective Dorsal Rhizotomy - St. Louis Children's Hospital (with quad CP) stories gave us the boost and confidence that Pranav can avoid many challenges in his life, opting for this surgery.
How much it costs for the intensive physiotherapy?
Pediatric physiotherapy for SDR is not available in reachable locations. It costs per session 80£. Intensive physio will be more than 2 hours for 2-3 weeks. Moreover, we book local accommodations. As we have contacted many parents the funds we raise is enough for intensive physio and surgery cost.
How did we learn about the surgery and funding?
We contacted many parents who have gone through this journey and met their children post-surgery who were diagnosed same as Pranav. Initially, we decided to step ahead without funding but every parent advised us it's impossible to opt for this surgery without funding as it is expensive journey but worth for the child’s future. Moreover, post surgery we should have few years of intensive physiotherapy.
This journey is expensive moreover, in many stories, mostly mums/dads leave their careers to give their full-time care for their children which puts them behind their financial abilities. As a mum, I took a permanent break from my career, as we have no option left.
We are new to this journey, but we are taking guidelines from the stories of other parents. We are glad to share our experience with SDR and CP to others. It would be great if at least one child with CP gets benefited from our story. This is not just about raising funds, but creating awareness too.
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